18 January 2009

Most people support Alzheimer's research based on family consent

Decisions made by surrogates are vital for advancements in treatment of dementia, researchers say
University of Michigan Health System: 14 January 2009
By the time they have been diagnosed with Alzheimer’s disease, many patients’ decision-making ability is so impaired that they cannot give informed consent to participate in research studies.

Close family members are left with the decision, but there is no clear policy for this so-called “surrogate” consent. Because of that, research about the increasingly common disease is often stalled.

But a new study led by the University of Michigan Health System suggests that older Americans are very supportive of family surrogate-based research, and would support having their family members enroll them in research in case of future incapacity. The study appears in the new issue of the journal Neurology. … > full story

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